Breanna Rose (right) is a bright, happy and enthusiastic eight year old. But something separates her from others her age. Unlike a normal eight year old, Breanna
is unable to walk, roll over, reach out and grasp her doll, brush her hair, feed herself or even give her mom and dad a hug.
She is afflicted with an unusual movement disorder. Breanna suffers from Dystonia. Life is difficult for Breanna and others like her, yet we believe that one day life will
get easier.
Simple every day events are more than a challange for children with Dystonia. They require special equipment, special technology and special modes of transpertation. Because
they disabled, the mobility (equipment) companies are allowed to charge astronomical rates. For example, the stroller chair that you see Breanna sitting in (right) cost $6,000.
These type of expenses along with the rising cost of insurance and medical care, are often too much for any family to manage. Especially when on parent is forced to quit
his/her job to care for the child full time.
That is why we created Breanna's Wish. In addition to Breanna wishing that she can beat this disease, she wants other children and families to not have to bare such an increased
financial burden. We hold periodic events and fundraisers that benefit, families that have distonia, the Dystonia Medical Research Foundation, and Breanna Rose.
For more in depth information on dystonia please visit www.dystonia-foundation.org. For more information regarding Breanna Rose, please visit www.breannarose.org.
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